Anonymous
Which of the following statements best describes you?
- I’m a parent / guardian or other family member of a person with disability
- I’m a health professional
- I am a member of the public interested in the National Disability Strategy
- I am a member of the public interested in the National Disability Insurance Scheme
- I am employed by government (Australian, state, territory or local government)
Question 1:
What matters most to measure and report on as we seek to achieve inclusive and accessible communities for people with disability?
The example indicators “Accessibility of communication and information systems” and “Reported social contact, social networks, trusted connections and supportive relationships” are most important to me.
The list of example indicators in this domain could be condensed as some of them are quite similar (e.g. “Participation in social/community activities” and “Participation in recreational activities”).
You could add an “Activities of Daily Living” example indicator because it is very relevant here but doesn’t appear until a later domain.
The example indicator “Housing (choices that are flexible, suitable, affordable and accessible)” may fit better in Domain #2 Economic Security.
Question 2:
What is most important to measure and report on as we seek to achieve economic security for people with disability?
“Economic independence” is the most important indicator for me.
You may wish to add an indicator such as “Choice and control over living arrangement decisions” because there are no other indicators here that offer the person with a disability autonomy over where they live (it is perhaps alluded to in the “Economic independence” indicator).
Question 3:
What is most important to measure and report on as we seek to achieve health and wellbeing outcomes for people with disability?
The sub-outcome “I can access early intervention services” is most important to me.
Question 4:
What is most important to measure and report on as we seek to achieve rights, protection, justice and legislation outcomes for people with disability?
The example indicator “Ability to participate as equal citizens” is most important to me.
You may wish to add “Cultural Safety” as an indicator because it is equally relevant here but does not appear until a later domain.
Question 5:
What is most important to measure and report on as we seek to achieve learning and skills outcomes for people with disability?
The sub-outcomes “I can access a mainstream school, higher education institution or
childhood education institution that is welcoming and inclusive” and “I have continued access to learning in formal and informal settings”.
You may wish to change the wording of the sub-outcome “I have a teacher who understands my needs” to more whole-school inclusive wording of “I have education staff who understand my needs”.
You may wish to change wording of example indicator “Adult literacy/numeracy” to “Attainment of functional literacy/numeracy.”
Question 6:
What is most important to measure and report on as we seek to achieve personal and community support outcomes for people with disability?
The sub-outcomes “I can access community-based services when and where I need them” and “I receive support irrespective of my income, physical location or cultural background” are most important to me.
Both these indicators support the necessity of people in regional and rural areas having access to the same healthcare and supports as people in metropolitan areas.
Question 7:
How often would you like to see progress against the outcomes for people with disability in the National Disability Strategy and the National Disability Insurance Scheme reported?
Once a year.
Question 8:
Is there anything else that you think should be considered when we are monitoring and measuring the impact of activities on people with disability?
Patient-centred qualitative measures are equally as important as quantitative ones. Please continue to consider using a balance of both in your measurement approaches. Thank you.