15729 – Tara
No issues with the advocacy framework as it is presented for those that qualify for the NDIS. My biggest concern is that folks not on the NDIS have lost representation and support. Have shared my views on a more holistic framework based on quality of life for whole of life and that collection of data and info be sovereign in a data trust/vault with strict, secure and regulated access , under the governance of a public-private-citizen model. Once the inclusive data is collected across the population (common data models) snd based on WHO guidelines and standardised MEDICAL assessments (not IA) government can extract de-identified data for research, funding and monitoring. It will allow for massive streamlining, restructuring, monitoring and measuring actual outcomes.
A copy of this has already been submitted to cabinet and for review by the new NDIS Minister Shorten