Carer of a person with disability
Thank you for the opportunity to respond, although time restraints prevent
me from being able to address the NDAP discussion paper in totality.
I am a mature aged sole parent of a dear young man with both an intellectual
disability and profound autism, who is non-verbal.
My most desperate and immediate concern is that my son will definitively
require lifelong provision of his robust and ‘bench-marked’ advocacy service
(Action for people with disability)that will:
i. support him during my life time
ii. extending same & protection beyond my life time/and during his.
I feel that the National Disability Insurance Scheme (NDIS) has a
overriding responsibility to ensure that relevant advocacy services are
appropriately funded not only for ‘fit-for-purpose’ training to offset the
underdeveloped NDIS rollout and associated staff shortages but more
importantly the grossly under recognised component ‘succession planning’ –
funding post 2018.
I look forward to the proposed workshops.