Anonymous

Which of the following statements best describes you?

• I’m a parent / guardian or other family member of a person with disability

Question 1:

What matters most to measure and report on as we seek to achieve inclusive and accessible communities for people with disability?

Nil input.

Question 2:

What is most important to measure and report on as we seek to achieve economic security for people with disability?

Nil input.

Question 3:

What is most important to measure and report on as we seek to achieve health and wellbeing outcomes for people with disability?

Nil input.

Question 4:

What is most important to measure and report on as we seek to achieve rights, protection, justice and legislation outcomes for people with disability?

Nil input.

Question 5:

What is most important to measure and report on as we seek to achieve learning and skills outcomes for people with disability?

Nil input.

Question 6:

What is most important to measure and report on as we seek to achieve personal and community support outcomes for people with disability?

Nil input.

Question 7:

How often would you like to see progress against the outcomes for people with disability in the National Disability Strategy and the National Disability Insurance Scheme reported?

Nil input.

Question 8:

Is there anything else that you think should be considered when we are monitoring and measuring the impact of activities on people with disability?

I would like to see the continuation of non diagnostic framework to NDIS which is based on level of ability and disability rather than diagnosis . My child with ADHD is declined assistance on diagnosis of a medical condition which can be treated with medication , but many other people on the NDIS with a condition are also treated with medication and still receive services.

I would also like a measure of cost effectiveness – I do feel there is still cost efficiencies to be made and further balance of funding between recipients .. the cost of 24/7 Sils for one person is sometimes as expensive as hospital and surely other models of care are more appropriate.

I also feel there is age discrimination and the gap between what a 63 year old is offered on NDIS compared to a 65 in the aged care system is beyond belief and needs to be reconsidered.