Which of the following statements best describes you?
• I’m a parent / guardian or other family member of a person with disability
• I’m a health professional
During the first stage of consultations we heard that the vision and the six outcome areas under the current Strategy are still the right ones. Do you have any comments on the vision and outcome areas being proposed for the new Strategy?
My passionate area of propose changes are the unprecedented COVID world we are living in, and Young People in Nursing Homes.
I had to put my severely disabled brother into a nursing Home in April, during the first Lockdown and the transition to the home, for a totally dependent, non verbal, non mobile,Cerebral Palsy man was the most horrific situation we had ever endure. Hi supported DHHS SIL home could no longer care for him following a cancer diagnosis!
Group homes NEED to be able to engage Registered Nurses to provide medical and nursiomjg care to residents who develop medical conditions!
What do you think about the guiding principles proposed here?
Ageing disabled people need to be listened to, especially in regional country areas, where services are limited!
What is your view on the proposal for the new Strategy to have a stronger emphasis on improving community attitudes across all outcome areas?
There is a severe lack of training available to staff in the hospital and aged care community regarding patients that present for care with disabilties, especially when the patients are high needs and non verbal!
Community attitudes could be improved by allocating funds for staff training in disability needs, and also the availability of advocates for patients with elderly parents/family members.
How do you think that clearly outlining what each government is responsible for could make it easier for people with disability to access the supports and services they need?
I live in Geelong, the home of the NDIS, and UNTIL they decide to employ the right people who understand what DISABILTY is, the scheme will never achieve its ultimate goals.
I have a degree in health, have the lived experience of having a disabled family member for nearly 60 years, am an NDIS advocate and live 2 kilometres from its head office and have applied for at least 20 positions since its inception, and yet have never even been offered an interview!So my faith in the service is flawed!
How do you think the Strategy should represent the role that the non-government sector plays in improving outcomes for people with disability?
I think the Strategy should support the limiting of NDIS Service providers popping up, and those that are corrupting the service,
The terrible case in Adelaide of Anne Marie Smith I s a shockingly a prime example of the holes in the service!!
What kind of information on the Strategy’s progress should governments make available to the public and how often should this information be made available?
Two years is too long between reports -at leat every 12 months
What do you think of the proposal to have Targeted Action Plans that focus on making improvements in specific areas within a defined period of time (for example within one, two or three years)?
Plans need to be prioritised, and that will depend on its occurrence!
How could the proposed Engagement Plan ensure people with disability, and the disability community, are involved in the delivery and monitoring of the next Strategy?
I remember in 1986 being involved in the Disability Act reform, and was looked upon for suggesting to include real people in the collation of information-until then, many disabled people did not have a voice!!
Is there anything else you would like to share about the ideas and proposals in the position paper?
Just please look into ageing population, and the lack of NDIS funding that goes with a participant when they move from a group home to Aged Care!
$19.88 A DAY IS AN INSULT!!!!!!!!
This is all the NDIS provides once moved in an Aged Care Nursing Home facility!!!!!!